We’ve had lots of positive feedback on our first article about the Hawai‘i Neurotrauma Registry. In the last two years, we’ve given out information on neurotrauma injuries (stroke, traumatic brain injury, spinal cord injury) at 60 events and presentations to approximately 6,500 people.
There is a lot of information on patients with stroke, spinal cord injury or traumatic brain injury while they are in the hospital or rehabilitation facility.But what happens once they get home? What problems are they having? What kind of help do they need?
The Hawai‘i Neurotrauma Registry wants to know so the Hawai‘i Department of Health, Developmental Disabilities Division can make appropriate plans and policies.
We currently have 81 individuals with neurotrauma injuries who have registered. They took more people — especially from the Neighbor Islands — and younger people. The registry is voluntary and open to any resident of Hawai‘i, any age, who has had a neurotrauma injury at any point in his or her lifetime.
You can fill out the confidential survey online at www.svy.mk/1qybSHZ.Call us (there’s a tollfree number for Neighbor Islands) to receive a copy by mail or to schedule assistance completing the survey. Email us with any questions, as well. With your help, the registry will be a success. Mahalo.
University of Hawaii at Manoa
John A. Burns School of Medicine, Pacific Basin RRTC
677 Ala Moana, Suite 202, Honolulu, HI 96813
808-692-1375/1372 | 1-866-447-9023