Tag: Kokua Mau

  • Doc, Follow My Orders

    Momi and Roland are a retired couple living in Central O‘ahu. Last year Roland learned he has incurable lung cancer and has been in the hospital several times. The couple has had many conversations together and with the doctors. Because of his short life expectancy and desire for quality of life, he has decided to forgo aggressive life-prolonging treatments although he still wants hospitalization if needed. His doctor recommended that he put his wish to let nature take its course in writing in a document called POLST (Physicians Orders for Life-Sustaining Treatment). This form, signed by his doctor, will ensure that his healthcare wishes be carried out if he is not able to speak for himself at anytime. It also helps put Momi at ease, since she is the one who will be called on to make decisions for Roland if he is unable.

    One night, Roland has problems breathing. Momi calls 911 and the paramedics arrive. Knowing her husband’s wishes, Momi wants to be sure that if her husband’s heart or breathing stop en route to the hospital, he can have the natural death he desires. She runs to the kitchen, grabs the completed and signed POLST form hanging on their refrigerator, and hands it to the paramedics. Momi can now feel a sense of relief that her husband’s treatment wishes will be followed, even if she’s not around to tell his medical providers.

    So, what is a POLST, and how does it work? A POLST is a portable doctor’s order that makes you or your loved one’s wishes for treatment known. Portable means that it is valid wherever the patient is, whether it is at home, in an ambulance, in an emergency department or anywhere in the hospital or a nursing home. It is for people with a chronic debilitating illness or a life-limiting disease, such as end-stage lung or heart disease, a terminal cancer or anyone who may be approaching the end of their life.

    How is the POLST different from an Advance Healthcare Directive (AD)? POLST is completed by you and your doctor and turns your healthcare wishes into orders for healthcare providers and ambulance personnel to follow. An AD is a form that you and everyone over 18 should have to document your values and future wishes for healthcare, and allows you to appoint an agent to act as your health care power of attorney in the event you are unable to speak for yourself. The combination of the POLST and AD will help make sure your wishes are known even if you cannot speak for yourself.

    Be just as prepared as Momi and Roland! By talking about these issues ahead of time, you can prevent crisis, relieve stress and ensure that your family’s healthcare wishes are honored. Take action and start the conversations today. To learn more about the POLST and AD or to download forms, visit www.kokuamau.org.

     


    Kokua Mau
    Hawaii Hospice and Palliative Care Organization
    808-585-997 | info@kokuamau.org
    www.kokuamau.org

    Momi and Roland are a retired couple living in Central O‘ahu. Last year Roland learned he has incurable lung cancer and has been in the hospital several times. The couple has had many conversations together and with the doctors. Because of his short life expectancy and desire for quality of life, he has decided to…

  • Conversations About Wishes

    Gernations - 2014-12-01 - Conversations About Wishes - Image 01 Auntie K was having trouble breathing at home and her son called 911. She is now in the Intensive Care Unit. The doctor asks the family, “What would your mother want us to do if she could speak for herself right now? She’s having more trouble breathing. Do you want us to “‘do everything?’”

    Unfortunately, this is a very common scenario at hospitals in Hawai‘i. Sometimes, even when people have thought about these things and discussed them with their doctor, they haven’t sat down and talked with their family. And, yet, it is the family that the doctors and nurses turn to for answers.

    No one says that conversations about these things are easy. They are not easy. So how do you get started? Who should be involved? In Hawai‘i, one place to turn is Kokua Mau, Hawai‘i Hospice and Palliative Care Organization. Kokua Mau knows these conversations are crucial and it invites you to use its free resources to help explore options and begin the conversation.

    Kokua Mau is a group of volunteers from many organizations and professions who have joined together “to weave a lei of caregiving and support so that the people of Hawai‘i facing serious illness can live in the place of their choice, with relief of pain and suffering and according to their values, beliefs and traditions.” (Kokua Mau Mission Statement)

    Gernations - 2014-12-01 - Conversations About Wishes - Image 02Kokua Mau has information for individuals, families and health professionals. Its website (www.kokuamau.org), has direct links to community resources, such as downloadable Advance Directive forms and printable information that covers topics that we often find difficult to talk about. For instance:

    • If someone is not able to eat, what are the pros and cons of tube feeding? (You can view or download a guide for decision making about tube feeding on Kokua Mau’s website.)
    • What is POLST? (Physicians Orders for Life-Sustaining Treatment, a portable doctor’s order that makes your wishes known.)
    • What are the pros and cons of CPR for someone who is elderly and frail? (Did you know that among this group CPR is less than 5 percent effective?)

    Along with written resources, Kokua Mau has a Speakers Bureau that can meet with your group to start the conversations that we all need to have.

    As our state’s nonprofit hospice and palliative care organization, Kokua Mau recently received national recognition with the 2013 Trailblazer Award from the National Hospice and Palliative Care Organization.

    So, what happened with Auntie K? Fortunately her son and other family members began to remember that when her brother had been hospitalized, Auntie K had spoken of what she would want if that happened to her. Because of this, they were able to come together as a family and follow her wishes. The members of Kokua Mau hope that with the use of its free resources, none of you will ever end up at the bedside of your loved one wondering what she or he would have wanted.


     

    Kokua Mau, Hawai‘i Hospice & Palliative Care Organization
    808-585-9977 | info@kokuamau.org
    www.kokuamau.org

    Auntie K was having trouble breathing at home and her son called 911. She is now in the Intensive Care Unit. The doctor asks the family, “What would your mother want us to do if she could speak for herself right now? She’s having more trouble breathing. Do you want us to “‘do everything?’” Unfortunately,…